Archive for May, 2014

Sickle cell. I’m sick of this cell. This prison like hell. Sick of the sales they sell…of false cures in pill bottles. Start the regimen and more ills follow. Makes you feel hollow. How low is rock bottom when its past the stones? This pain pass through bones. Faith comes through prayers and moans. But God called my phone, told me through Him even my weak be strong. – Jasmine Bailey (R.I.P.)

 

Jasmine Bailey passed 5 months ago

AN APP FOR SICKLE CELL PATIENTS

Posted: May 20, 2014 by sicklecellunite in Sickle Cell
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Image  Warriors with Sickle Cell are often fatigue, mostly due to low normal red blood cells/anemia.

Difference between fatigue and tiredness

Everyone feels *tired*, at the end of the day, as a result of 12-14 waking hours spent in physical and mental work plus emotional interactions. This kind of tiredness is relieved by rest or a good night’s sleep. Fatigue on the other hand is a type of chronic tiredness that is not so easily addressed.

Fatigue is a feeling of low physical and/or mental energy and motivation, at times accompanied by sleepiness, such that the patient finds it difficult to perform daily activities.

Fatigue, as compared to routine tiredness, lasts for a longer duration and does not reduce by physical and mental rest alone.

Common symptoms of fatigue are weakness, low energy, constant tiredness, absence of motivation, struggle to concentrate and inability to start or complete any task.

Sickle Cell warriors aren’t lazy, they are fatigued

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Sickle Beta Zero Thalassemia (Sickle BA-ta zero thal-a-SEE-me-a) is similar to sickle cell anemia. Your child’s red blood cells contain abnormal hemoglobin, called “hemoglobin S” or “sickle hemoglobin”. In addition, the red blood cells have a defect called thalassemia, which results in cells that are small in size and more pale than usual. Instead of appearing round or donut shaped, your child’s red blood cells are somewhat small, pale, and misshapen. Some may appear sickled or banana shaped.

Because sickle beta zero thalassemia is inherited, it is a lifelong disorder. There is no treatment or cure. Your child will always have a mild anemia or slightly low blood count. This may result in occasional tiredness or weakness.

There are several types of sickle cell disease. The most common are: Sickle Cell Anemia (SS), Sickle-Hemoglobin C Disease (SC), Sickle Beta-Plus Thalassemia and Sickle Beta-Zero Thalassemia.

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Molecular Blood Group Typing Technique Developed

Posted: May 12, 2014 by sicklecellunite in Uncategorized
 
Scientists have designed a new system for molecular blood group typing that offers blood banks the possibility of extensive screening of blood donors at a relatively low cost. Although blood transfusion is generally safe, alloimmunization (when an antibody is formed in response to an antigen that is not present on a person’s own red blood cells) remains a dreaded complication, particularly in patients with sickle cell diseases.
 
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Not everything going on in our bodies is related to sickle cell! Sometimes something else may be wrong and the docs tend to focus only on sickle cell. When in doubt, always ask for a second opinion or a specialist in the area of concern. We have a very good health care system, and if you didn’t have sickle cell, you would be seeing a specialist for that weird feeling you are having. Please don’t assume everything is always due to sickle cell! We are still human and may have other health issues too. Even if your doctor doesn’t take it seriously, please push until you get a real answer. Your body warns you that something is wrong through pain, and if it doesn’t feel like usual sickle cell pain, it may not be. It’s better safe than sorry. This can save your life!

 

Source:http://sicklecellwarriors.com/its-not-always-sickle-cell/

Sickle cell enuresis or “bedwetting” means that the kidneys no longer concentrate (condense) urine like they should.

This results in:what causes pain in the sickle-cell person

• Larger amounts of urine
• Going to the bathroom often to empty the bladder
• Bedwetting, even when your child does not drink a lot before bedtime

What causes sickle cell enuresis?

When abnormal sickle cells get trapped inside the small blood vessels in the kidneys, they block blood flow and keep the kidneys from working as they should.

This can cause:

• Making more urine, this makes it easy to become dehydrated (losing too much water)
• Loss of salt and water balance in the body
• Increased thirst to make up for the water that is being
• lost in the urine
• Damage to the kidneys, which may get worse with time

Your child’s ability to control the extra urine at night depends on:

• Your child’s age and sex. It is more common in boys and in younger children.
• How deeply your child sleeps
• If bedwetting runs in your family

What symptoms could my child have?

Symptoms made include any of these:
• Urination (voiding) more of during the day and night
• Wetting the bed at night

If your child has a fever, burning or pain when he/she urinates, call the doctor right away to make sure your child does not have a bladder infection

How can I help my child?

• If your child has a problem with bed wetting, talk to your healthcare provider

• Your child is not doing it on purpose. Do not get mad or punish the child.

• Make sure your child drink plenty of fluids during the day so that your child can limit the fluid in-take before bed. Keep your child well-hydrated to avoid of kinds of sickle cell problems.

A recent argument in another sickle cell group inspired this post. Someone asked if Sickle Cell was a form of cancer. Most answers were no, including mine. I think since it’s now being treated with Hydroxyurea (which is used for cancer patients) they are thinking it’s a form of cancer. Hydroxyurea increases fetal hemoglobin production and slightly raises the total hemoglobin concentration in the body. Fetal hemoglobin reduces the chance that red blood cells will sickle in a person who has sickle cell disease which is to prevent to pain crisis and prevent frequent hospital stays. It’s use for SC warriors who have: Frequent painful events (at least three in a year), A history of recurrent acute chest syndrome, and Severe anemia.

A to Z List of Cancers – S

Salivary Gland Cancer
Childhood
Sarcoma
Ewing
Kaposi
        Osteosarcoma (Bone Cancer)
Rhabdomyosarcoma
Soft Tissue
Uterine
Sézary Syndrome
Skin Cancer
Childhood
Melanoma
Merkel Cell Carcinoma
Nonmelanoma
Small Cell Lung Cancer
Small Intestine Cancer
Soft Tissue Sarcoma
Squamous Cell Carcinoma – see Skin Cancer (Nonmelanoma)
        Childhood
Squamous Neck Cancer with Occult Primary, Metastatic
Stomach (Gastric) Cancer
Childhood

http://www.cancer.gov/cancertopics/types/alphalist/s

I don’t see Sickle Cell listed as a cancer or a form of cancer. Do you agree that sickle cell is NOT a form of cancer?