Posts Tagged ‘sickle cell trait’

This is done and all the promoting for it is over. However, I just want to celebrate that we met the signature goal and then some. I didn’t post here because I was so busy posting on other social networks and this one slipped my mind. However, I say keep signing and sharing anyway, let them know sickle cell is important!!

https://petitions.whitehouse.gov/petition/declare-sickle-cell-disease-national-health-priority-and-support-legislation-expand-and-establish/jFgQrMJ7

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#boldlipsforsicklecell challenge. Check it out on instagram using the #boldlipsforsicklecell hashtag

T-Boz already did the challenge!

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I accept #BoldLipsForSickleCell & I ask ALL my followers to accept & support!! Guys get creative your girl can give u a BOLD KISS on your cheek & that will work cuz your still wearing the lips!!! I dare u ALL #tboz #tlc #tbeezy #boom #yup #MakeADifference #Support #Charity #LetsGo

Not many people are familiar with this medicine as treatment for Sickle Cell.

Let me first explain the uses of the medicine:

Hydroxyurea is used to treat skin cancer (melanoma), a cancer of the white blood cells called chronic myelocytic leukemia (CML), and metastatic cancer (cancer that has spread) of the ovaries. This medicine may also be given together with radiation treatment for head and neck cancer (primary squamous cell cancer).

Hydroxyurea is also used in adult patients with sickle cell anemia to prevent painful episodes and reduce the need for blood transfusions. It works by making the red blood cells more flexible.

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Although, Hydroxyurea was first synthesized in 1869 in Germany and became FDA approved in 1967 for the treatment of neoplastic diseases. It wasn’t until February 1998, hydroxyurea received a new indication, for the treatment of sickle cell disease. It is approved for use in reducing the frequency of painful crises and the need for blood transfusions in adult patients with recurrent moderate-to-severe painful crises (generally at least three during the preceding 12 months).

The efficacy of Hydroxyurea in the treatment of sickle cell disease is generally attributed to its ability to boost the levels of fetal hemoglobin. This lowers the concentration of Hb S within a cell resulting in less polymerization of the abnormal hemoglobin. However, the mechanisms by which it increases Hb F are unclear.

I’ve asked many carriers about the effects they’ve noticed in themselves or their children who are carries and I received different answers…….below

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Sickle Cell Symptoms

As I sat in church on a Sunday afternoon of last November, trying to identify the obtrusive blur that had slowly begun to disrupt my vision, I had no clue that my life would be changed from that moment on. I covered my left eye with my left hand… no blur, perfect vision. I followed with my right hand over my right eye… no blur, perfect vision… but WAIT!! Where did the Pastor’s head go??? I tested my vision at different points around the church, and it seemed that the center of everything I focused on had disappeared. Two days later,… read the rest at http://sicklecell101.tumblr.com/post/78454234668/sickle-cell-retinopathy-an-eye-witness-account

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Myron Mills, the Sickle Cell Outreach Coordinator for Pinellas and Manatee counties will be attending the meeting April 22nd at the North Sarasota library to give a presentation regarding the Sickle Cell Disease. Please remember to mark your calendars and spread the word. >>>> https://www.facebook.com/events/636054746430555/Image

For more information, please email: SickleCellUnite@outlook.com

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Sigma run funds will lay foundation for universal screening

!!Click Below!!

Good News for Sickle Cell

941 Sickle Cell Unite Support Group Meeting

North Sarasota Library – April 22nd – 6:30pm

Her child has Sickle Cell and she was arrested for Truancy. This is why I am trying to hard to raise awareness about Sickle Cell. A lot of people STILL don’t know much about it and it’s not really talk about in school & It’s very important that if you do have a child with a disability attending school to look into getting the 504 plan, that way issues such as hers will already be expected.

***Support Group Meeting April 22nd, 2014 at 6:15pm at the North Sarasota Public Library***